Tomorrow is RARE DISEASE DAY! 💙 Donate to The Progeria Research Foundation: https://bit.ly/PRFSMDonate WHAT IS Rare Disease Day? It is the official international awareness-raising campaign for rare diseases, like #Progeria, observed annually on the last day of February. With over 300 million people globally living with a rare disease, we join hands across borders and amidst the 6000 rare diseases to advocate for equitable access to diagnosis, treatment, care, and social opportunities. https://w

In this short video, Dr. Leslie Gordon, Co-Founder & Medical Director of the Progeria Research Foundation, explains the vital importance of Rare Pediatric Disease PRVs for progeria research and other disorders. If you have not taken action on this issue, do so here: https://rarediseases.org/driving-policy/take-action/#/224 | National Organization for Rare Disorders, Inc. (NORD)

Help the Progeria Research Foundation wish a Happy 12th Birthday to Livia from Brazil 🇧🇷! 🎁Feliz aniversário Livia loves playing with her pets during her free time. She has many animals including dogs 🐕, cats 🐈, rabbits 🐇, turtles 🐢, fish 🐠, chickens 🐓, and peacocks 🦚. She also loves singing and dancing at school events. #birthday #Progeria #happybirthday #birthdaygirl | Progeria Research Foundation

Meet the Kids | The Progeria Research Foundation

Register TODAY for PRF's 2021 Race for Research in-person on our Peabody, MA course -- or VIRTUALLY, wherever you live! The in-person race will feature our signature 5K run and 2-mile fun walk – it’s a great course for the serious athlete, casual runner, families, and teams. Please join us on Saturday, September 18. Register at: www.PRFRoadRace.org #progeria #raceforresearch #runforcharity | Progeria Research Foundation

In Memory | The Progeria Research Foundation

The Progeria Research Foundation just got a $25,000 MATCH Challenge - Now you can DOUBLE your impact❣️ You can get us to our goal 🥅. EVERY DONATION made by Monday, July 15th will be matched up to $25,000!! Please donate TODAY! Help us push the boundaries of science toward the cure for Amina and all those with #Progeria. 💙 Donate here: https://bit.ly/ONEpossible2024 by July 15th and be ONE to make the cure POSSIBLE! 💙 #ONEpossible #fundraiser #fundraisingcampaign #research #scientificbreakthro

Enjoy these Progeria Research Foundation Team runner clips from Falmouth Road Race yesterday! You are all amazing! You can still support our team: https://bit.ly/PRF_2025_FRR #NumbersForNonprofits #findthecure #Progeria | Progeria Research Foundation

🙏 From The Progeria Research Foundation, the children, young adults and their families, a giant thank you to ALL who donated – big or small - for being part of #GivingTuesday with us! Please continue to share our posts and raise awareness of this ultra-rare disease. Together, we WILL find the cure ❣️ It’s never too late to GIVE https://bit.ly/PRFSMDonate #ClinicalTrials #Progeria #findthecure #lonafarnib | Progeria Research Foundation