Race to Cure Life-Threatening Skin Disease May Be Key to Help Others | Amanpour and Company | EB Research Partnership
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Parents raising awareness of skin disease known as "EB"
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9news.com
Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a devastating genetic condition that makes even minor friction cause wounds and scarring. The new documentary Matter of Time, premiering at Tribeca Festival, is spotlighting the urgent need for research and cures. If you or someone you know experiences unexplained skin fragility or blistering, early diagnosis can change outcomes. 📸 photo credit: Mayo Clinic & American Academy of Dermatology Book a consult: www.drannachacon.com | Ann
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Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a deva…
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FacebookAnna Chacon, MD FAAD
What is EB?
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Oct 24, 2017
ebresearch.org
Epidermolysis bullosa (EB) is a genetic blistering skin disease that causes a baby's skin to blister and peel off, causing extreme pain and sometimes death. No Baby Blisters aims to create an affordable cure for forgotten, medically neglected children, by committing to finding a fast cure through the FDA. Learn more about EB with Dr. Aaron Tabor! #NoBabyBlisters #epidermolysisbullosa #fastcureplan #cureforEB #raredisease #skindisease #geneticdiseases #genetherapy #geneengineering | GenScript
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