Did you know that 75% of rare diseases affect children? In Australia, a disease is considered rare if it affects less than 5 in 10,000 people. It's Rare Disease Month, and we want to highlight the important research being conducted in the Rare Diseases Now (RDNow) program. Meet Dr Rocio Rius, who explains her research at Murdoch Children's Research Institute (MCRI) and the Centre for Population Genomics, and what she hopes to make possible for children and families living with a rare disease. RD
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Did you know there are 6,800 different rare diseases? Rare diseases aren’t all that rare: More than 25 million Americans have one. Today, as #RareDiseaseDay and the final day of #HeartMonth we’re introducing you to Connor Harrell, 10, who suffers from a rare heart disease -- Loeys-Dietz Syndrome. Loeys-Dietz Syndrome is a rare disease caused by the enlargement of the aorta – which delivers blood from the heart to the rest of the body – and it can lead to aneurysms. “Loeys-Dietz is a deadly disea
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