Today is day 13 PICU. Tomorrow she goes in for another esophagram to see if her esophagus is healed or still leaking fingers crossed its healed and she can be extubated🤞🏽 dad came to see us today she really enjoyed seeing him. She misses her family and home very much. Im sure you can tell my posts this time are a little different less pictures less information. While she has so many of you that love her and care sharing positive words on our posts its not always like that. When shes in the hos
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Today is day 13 PICU. Tomorrow she goes in for another esophagra…
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PICU day 16. Slowly moving forward we had a bit of commotion last night because of missed communication between day and night team. She was ready to be off high flow air but she isn’t ready to let go of her air. In her head she’s not going to be able to breathe and thats some PTSD because she’s been through so much in her life especially this last year she knows what makes her feel better and what doesn’t. So they were slowly turning down the flow hoping to show her she was ok and safe without i
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