What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
1:01
YouTubeEB Research Partnership
What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
Thomas DiPalma is one of the many people living with Epidermolysis Bullosa (EB), often called “the butterfly disease” because of how fragile the skin can be. In this conversation, EBRP CEO Michael Hund helps break down what EB is and why it gives us both urgency and hope. We’re grateful to @NYSE and Ashley Mastronardi for taking the time ...
1.6K views5 months ago
Related Products
Butterfly Children
Butterfly Effect Movie
Monarch Butterfly Migration Pattern
#butterfly
Butterfly Life Cycle – Egg to Butterfly 🦋 Amazing Metamorphosis Transformation Nature Documentary
Butterfly Life Cycle – Egg to Butterfly 🦋 Amazing Metamorphosis Transformation Nature Documentary
YouTube5 months ago
She Uncovered the Hidden Wings of a Butterfly — Meaning & Reaction
She Uncovered the Hidden Wings of a Butterfly — Meaning & Reaction
TikTok1 month ago
Top videos
The Race to Cure the Butterfly Disease | Matter of Time #eddievedder #epidermolysisbullosa #healeb
0:55
The Race to Cure the Butterfly Disease | Matter of Time #eddievedder #epidermolysisbullosa #healeb
YouTubeEB Research Partnership
1.6K views7 months ago
How is Lupus Diagnosed? Diagnostic Test for Lupus | Dr. Shweta Bhardwaj
0:42
How is Lupus Diagnosed? Diagnostic Test for Lupus | Dr. Shweta Bhardwaj
YouTubePACE Hospitals
3.6K views1 month ago
What is Lupus? Warning Symptoms & How It Affects Your Organs 🦋 | Dr. Shweta Bhardwaj
2:19
What is Lupus? Warning Symptoms & How It Affects Your Organs 🦋 | Dr. Shweta Bhardwaj
YouTubePACE Hospitals
259 views2 months ago
Butterfly Garden
Plants and tips for creating a butterfly garden
6:56
Plants and tips for creating a butterfly garden
YouTube2 Minute Gardener
198 views1 month ago
How to make a butterfly garden - plants that attract butterflies fast and easy 🦋 What I plant
7:04
How to make a butterfly garden - plants that attract butterflies fast and easy 🦋 What I plant
YouTubeGardening Dream
117 views2 months ago
Create a Magical Butterfly Garden Attract More Butterflies!
1:05
Create a Magical Butterfly Garden Attract More Butterflies!
YouTubeTop 10 Gardener with Ken Lai
109 views1 month ago
The Race to Cure the Butterfly Disease | Matter of Time #eddievedder #epidermolysisbullosa #healeb
0:55
The Race to Cure the Butterfly Disease | Matter of Time #eddievedder #epidermolysisbullosa #healeb
1.6K views7 months ago
YouTubeEB Research Partnership
How is Lupus Diagnosed? Diagnostic Test for Lupus | Dr. Shweta Bhardwaj
0:42
How is Lupus Diagnosed? Diagnostic Test for Lupus | Dr. Shweta Bhardwaj
3.6K views1 month ago
YouTubePACE Hospitals
What is Lupus? Warning Symptoms & How It Affects Your Organs 🦋 | Dr. Shweta Bhardwaj
2:19
What is Lupus? Warning Symptoms & How It Affects Your Organs 🦋 | Dr. Shweta Bhardwaj
259 views2 months ago
YouTubePACE Hospitals
What happens when hope has a target? This is a film about the Butterfly Disease and a community racing against time to end it. Families. Researchers. Artists. All lifting each other toward more treatments and ultimately, a cure. It’s not a matter of if. It’s a matter of time. Watch Matter of Time now on Netflix. 🦋 https://www.netflix.com/title/82184383 | EB Research Partnership
0:55
What happens when hope has a target? This is a film about the Butterfly Disease and a community racing against time to end it. Families. Researchers. Artists. All lifting each other toward more treatments and ultimately, a cure. It’s not a matter of if. It’s a matter of time. Watch Matter of Time now on Netflix. 🦋 https://www.netflix.com/title/82184383 | EB Research Partnership
2.8K views7 months ago
FacebookEB Research Partnership
This Butterfly-Shaped Rash Could Be Lupus! 🦋😨 #facts #medicalfacts
0:34
This Butterfly-Shaped Rash Could Be Lupus! 🦋😨 #facts #medicalfacts
1.2K views2 months ago
YouTubeJmsvShorts
Butterfly Rash in Lupus: Early Signs & Tests Explained by Dr. Gaurav Seth
0:39
Butterfly Rash in Lupus: Early Signs & Tests Explained by Dr. Gaurav Seth
865 views6 months ago
YouTubeDr Gaurav Seth Rheumatologist
Jonathan Said Goodbye Lupus Symptoms Butterfly Rash in 6 Weeks!
1:46
Jonathan Said Goodbye Lupus Symptoms Butterfly Rash in 6 Weeks!
2.5K views4 months ago
YouTubeGoodbye Lupus by Brooke Goldner, M.D.
0:59
Her body is as delicate as a butterfly's wing, easily broken; her parents give their all to prote...
994 views4 months ago
YouTube初澤記錄
1:35
Thyroid Swelling (Goiter): 4 Hidden Causes & What You Must Know
2.2K views10 months ago
YouTubeDr. Sahaj Joshi
1:43
Functions and Importance of Butterfly-Shaped Thyroid Gland in Human Body - World Thyroid Day Special
515 views3 months ago
YouTubePlanet Ayurveda
1:43
Functions and Importance of Butterfly-Shaped Thyroid Gland in Human Body - World Thyroid Day Special
221 views3 months ago
YouTubeDr. Vikram Chauhan
0:19
Raising Awareness About Junctional Epidermolysis Bullosa
3.9M viewsJan 8, 2025
TikTokbutterfly.child.3
0:34
Its a Stick tiktok a STICK #Monarch #monarchs #monarchbutterfly #monarchbutterlies #raisingmonarchs #raisingbutterflies #chrysalis #diseases #caterpillarchronicles #rasingcaterpillars #chrysalisdisection
5.4M viewsJul 17, 2022
TikTokkbwild_
1:03
Understanding Avian Influenza Outbreaks in Japan
479.6K views8 months ago
TikTokrakeshthapa_04
0:20
Understanding Epidermolysis Bullosa: Ewan's Journey
1M viewsFeb 17, 2025
TikTokida.irvine8
0:17
Understanding Junctional Epidermolysis Bullosa in Children
1M viewsFeb 13, 2025
TikTokdarcies_story
0:42
Mackenzie is our butterfly baby 🦋 She has recessive dystrophic epidermolysis bullosa, which makes her skin extremely fragile. We are determined to help raise awareness for this cruel disorder, and hope that one day there will be a cure. #epidermolysisbullosa #eb #ebawareness #butterflybaby #medicalmom #medicalmama #babytok #chronicillness #ebwarrior
612.6K viewsApr 17, 2025
TikTokmackenzies_eb_journey
0:27
Honestly, how often do you check? 🦋 Thyroid Awareness Month is here! 🦋 Your thyroid is a butterfly-shaped gland in your neck, and while it’s small and ✨cute✨ it has a huge impact on your entire body; energy, metabolism, mood, health. Let’s talk about something simple you can do right now: checking your neck! Here’s how to do a quick neck check: 1️⃣ Tilt your head back slightly. 2️⃣ Use your fingers to gently feel (or palpate) around your thyroid area. Any lumps, tenderness, or swelling? Talk t
191.5K views8 months ago
TikTokthyroidloveclub
0:19
Darcie's Journey with Epidermolysis Bullosa Explained
165.2K viewsMar 14, 2025
TikTokdarcies_story
See more
Static thumbnail place holder