What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co-Chair Dr. Shervin Assassi breaks down how this bio-registry is helping researchers better understand systemic sclerosis. Funded by the SRF, CONQUER collects clinical data and biosamples from people newly diagnosed with scleroderma, giving researchers the tools they need to discover better treatments and, eventually, a cure. Learn more about ho
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FacebookScleroderma Research Foundation
What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co
Scleroderma Research Foundation. Scleroderma Research Foundation · Original audio. What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co-Chair Dr. Shervin Assassi breaks down how this bio-registry is helping researchers better understand ...
5.8K views10 months ago
Scleroderma Treatment
Scleroderma Explained: Symptoms, Causes, and Treatment Options | Comprehensive Guide"
11:04
Scleroderma Explained: Symptoms, Causes, and Treatment Options | Comprehensive Guide"
YouTubeDr Uzma's Medical Academy
414 viewsOct 10, 2024
An Overview of Scleroderma Part 2: Treatment and management
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An Overview of Scleroderma Part 2: Treatment and management
YouTubeDemystifying Medicine
43.7K viewsDec 8, 2015
Patient Forum: Welcome & Scleroderma 101 - Understanding diagnosis and treatment (2023)
39:13
Patient Forum: Welcome & Scleroderma 101 - Understanding diagnosis and treatment (2023)
YouTubeSRFCURE
4.6K viewsJun 20, 2023
Top videos
Join the 2024 SRF Research Challenge to support research like Dr. Flynn's! Dr. Ryan Flynn (Harvard University, Boston Children's Hospital) shares information about his SRF-funded research project, Cell Surface GlycoRNAs in Autoimmunity, and how it could help people living with scleroderma. Your support of innovative research like Dr. Flynn's, and other projects funded by the SRF, helps advance our understanding of this disease. By joining this year's Research Challenge, you'll be a part of the n
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Join the 2024 SRF Research Challenge to support research like Dr. Flynn's! Dr. Ryan Flynn (Harvard University, Boston Children's Hospital) shares information about his SRF-funded research project, Cell Surface GlycoRNAs in Autoimmunity, and how it could help people living with scleroderma. Your support of innovative research like Dr. Flynn's, and other projects funded by the SRF, helps advance our understanding of this disease. By joining this year's Research Challenge, you'll be a part of the n
FacebookScleroderma Research
434 viewsJul 9, 2024
What genetic factors drive juvenile systemic sclerosis? 🧬 In this video, Dr. Kathryn Torok, SRF-funded researcher and pediatric rheumatologist at Pittsburgh Children's Hospital, discusses her work on the Identification of Novel Pathogenic Genes in Juvenile Systemic Sclerosis project—AKA the Trios project. This study examines genetic factors that could lead to better treatments for young people living with juvenile systemic sclerosis. Watch the video to learn more!At the Scleroderma Research Fou
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What genetic factors drive juvenile systemic sclerosis? 🧬 In this video, Dr. Kathryn Torok, SRF-funded researcher and pediatric rheumatologist at Pittsburgh Children's Hospital, discusses her work on the Identification of Novel Pathogenic Genes in Juvenile Systemic Sclerosis project—AKA the Trios project. This study examines genetic factors that could lead to better treatments for young people living with juvenile systemic sclerosis. Watch the video to learn more!At the Scleroderma Research Fou
FacebookScleroderma Research
1.4K viewsAug 28, 2024
#TealTalk June 20, 2024: What's Exciting in Scleroderma Resesarch
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#TealTalk June 20, 2024: What's Exciting in Scleroderma Resesarch
YouTubeNational Scleroderma
1.4K viewsJun 21, 2024
Scleroderma Symptoms
Understanding Scleroderma Symptoms and Skin Changes
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Understanding Scleroderma Symptoms and Skin Changes
TikTokdraishawahmed_
9.5K viewsMar 29, 2025
Scleroderma is an autoimmune disease causing skin hardening, tightening, and discoloration. Skin signs include Raynaud’s phenomenon, shiny or thickened patches, ulcers, pigment changes, and calcium deposits (calcinosis). #scleroderma #autoimmune #raynauds #ulcer #skincare #calcinosis #skinproblems #dermatology #foru #foryoupage #fyp
Scleroderma is an autoimmune disease causing skin hardening, tightening, and discoloration. Skin signs include Raynaud’s phenomenon, shiny or thickened patches, ulcers, pigment changes, and calcium deposits (calcinosis). #scleroderma #autoimmune #raynauds #ulcer #skincare #calcinosis #skinproblems #dermatology #foru #foryoupage #fyp
TikTokdr.mehss
487.6K viewsJan 6, 2025
Scleroderma Explained: Causes, Symptoms, Diagnosis, Management
Scleroderma Explained: Causes, Symptoms, Diagnosis, Management
onlymyhealth.com
Jul 2, 2024
Join the 2024 SRF Research Challenge to support research like Dr. Flynn's! Dr. Ryan Flynn (Harvard University, Boston Children's Hospital) shares information about his SRF-funded research project, Cell Surface GlycoRNAs in Autoimmunity, and how it could help people living with scleroderma. Your support of innovative research like Dr. Flynn's, and other projects funded by the SRF, helps advance our understanding of this disease. By joining this year's Research Challenge, you'll be a part of the n
1:48
Join the 2024 SRF Research Challenge to support research like Dr. Flynn's! Dr. Ryan Flynn (Harvard University, Boston Children's Hospital) shares information about his SRF-funded research project, Cell Surface GlycoRNAs in Autoimmunity, and how it could help people living with scleroderma. Your support of innovative research like Dr. Flynn's, and other projects funded by the SRF, helps advance our understanding of this disease. By joining this year's Research Challenge, you'll be a part of the n
434 viewsJul 9, 2024
FacebookScleroderma Research Foundation
What genetic factors drive juvenile systemic sclerosis? 🧬 In this video, Dr. Kathryn Torok, SRF-funded researcher and pediatric rheumatologist at Pittsburgh Children's Hospital, discusses her work on the Identification of Novel Pathogenic Genes in Juvenile Systemic Sclerosis project—AKA the Trios project. This study examines genetic factors that could lead to better treatments for young people living with juvenile systemic sclerosis. Watch the video to learn more!At the Scleroderma Research Fou
1:31
What genetic factors drive juvenile systemic sclerosis? 🧬 In this video, Dr. Kathryn Torok, SRF-funded researcher and pediatric rheumatologist at Pittsburgh Children's Hospital, discusses her work on the Identification of Novel Pathogenic Genes in Juvenile Systemic Sclerosis project—AKA the Trios project. This study examines genetic factors that could lead to better treatments for young people living with juvenile systemic sclerosis. Watch the video to learn more!At the Scleroderma Research Fou
1.4K viewsAug 28, 2024
FacebookScleroderma Research Foundation
#TealTalk June 20, 2024: What's Exciting in Scleroderma Resesarch
53:31
#TealTalk June 20, 2024: What's Exciting in Scleroderma Resesarch
1.4K viewsJun 21, 2024
YouTubeNational Scleroderma Foundation
Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
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Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
3.4K views5 months ago
FacebookScleroderma Research Foundation
Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
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Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
3.4K views9 months ago
FacebookScleroderma Research Foundation
JOHN talks at the SCLERODERMA RESEARCH FOUNDATION benefit
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JOHN talks at the SCLERODERMA RESEARCH FOUNDATION benefit
1.2K viewsSep 23, 2022
YouTubeJohn Mayer France
Now available to watch: #BehindTheMystery featuring the Scleroderma Research Foundation! ✨ Watch the full segment & share so that everyone knows what #scleroderma is and does: https://bit.ly/behindthemystery-srf or link in bio
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Now available to watch: #BehindTheMystery featuring the Scleroderma Research Foundation! ✨ Watch the full segment & share so that everyone knows what #scleroderma is and does: https://bit.ly/behindthemystery-srf or link in bio
55.4K viewsFeb 21, 2023
TikToksrfcure
1:34
Dr. Whitfield on the Bright Horizon of Scleroderma Research
673 viewsJan 27, 2023
YouTubeSRFCURE
Behind the Mystery, featuring the Scleroderma Research Foundation | Carri Levy
14.5K views2 months ago
linkedin.com
1:23:34
Patient Forum: Scleroderma Research in Action - Understanding Clinical Trials (2025)
854 views11 months ago
YouTubeSRFCURE
5:44
An Overview of Scleroderma Part 1: Breaking it down
117.4K viewsDec 8, 2015
YouTubeDemystifying Medicine McMaster
1:25
Remembering Sunny: He Shares His Scleroderma Story in this Moving PSA
90 views2 months ago
YouTubeSRFCURE
37:09
Localized Scleroderma (Morphea), Christina Lam, MD, Michael York, MD
11.8K viewsSep 9, 2021
YouTubeNational Scleroderma Foundation
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At just 13, Mack was diagnosed with scleroderma. Now 17, he bravely shares his journey - the daily battles and the hope that keeps him going. His story reminds us why scleroderma research isn’t just important, it’s urgent. Every breakthrough gives kids like Mack a chance at a fuller, healthier life. 💙 We must unite to support research and raise awareness. No child should face scleroderma alone. Have a story to tell? Share your journey with us at communications@scleroderma.org. #NationalSclerode
12.8K views1 year ago
FacebookNational Scleroderma Foundation
5:48
Moving Forward - Scleroderma Research Foundation
3.1K viewsMar 14, 2012
YouTubeRare Disease Day
53:56
Overlapping Conditions in Systemic Sclerosis
46.6K viewsOct 23, 2012
YouTubeNational Scleroderma Foundation
1:10
Community Support for Scleroderma Awareness and Cure
800 viewsJan 3, 2025
TikToksrfcure
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The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in the search for a cure. Thank you for standing with us—together, we can and will end scleroderma. | Scleroderma Research Foundation
1.9K viewsJan 3, 2025
FacebookScleroderma Research Foundation
1:12
In this clip from the 2024 Patient Forum, Amy shares her top lifehack for managing life with scleroderma: trust your instincts and speak up for your health. 📣 As Amy explains, advocating for yourself—whether by reaching out to your doctor or confiding in a caregiver—can be a game-changer when navigating the challenges of scleroderma. The 2024 SRF Annual Patient Forum, "Collaborating for a Cure", took place on June 3 as part of our participation in Scleroderma Awareness Month. This event offered
7K viewsJan 15, 2025
FacebookScleroderma Research Foundation
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SRF-founding board member Susan Feniger explains what scleroderma is and how our Cool Comedy • Hot Cuisine fundraiser helps move research forward on live TV, reaching millions of viewers! 📺 As part of a cooking demo with CBS Los Angeles, Susan shared what scleroderma is and why she's passionate about finding a cure. A close college friend of SRF-founder Sharon Monsky, Susan immediately said yes when Sharon asked her to help found the Scleroderma Research Foundation. Since collaborating with Sha
1.6K viewsSep 24, 2024
FacebookScleroderma Research Foundation
54:39
Webinar: Scleroderma and the Lungs - A Spotlight on ILD, with Dr. Toby Maher (2025)
1.3K views8 months ago
YouTubeSRFCURE
48:39
Patient Forum: Cell Therapy in Scleroderma - Exploring Tomorrow’s Possibilities (2025)
876 views11 months ago
YouTubeSRFCURE
Research Award Program - Dermatology Foundation
8 months ago
dermatologyfoundation.org
58:28
GI Involvement in Scleroderma: The Microbiome & Promising Research, Elizabeth R. Volkmann, MD, MS
4.4K viewsNov 30, 2022
YouTubeNational Scleroderma Foundation
1:26
#SayScleroderma
4.7K views11 months ago
YouTubeWeAreSRUK
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Can supplements help in managing scleroderma? Dr. Volkmann weighs in at the this year's Patient Forum 🎥 In this clip, Dr. Elizabeth Volkmann shares insights on the use of supplements and how they can fit into the management of scleroderma. Check out the video to hear her perspective and learn what factors to consider when thinking about adding supplements to your care plan. “Collaborating for a Cure,” took place on June 2 as part of our participation in Scleroderma Awareness Month. The event of
3K views7 months ago
FacebookScleroderma Research Foundation
42:38
Current Advancements in Scleroderma Treatment
13.5K viewsMay 28, 2019
YouTubeScleroderma Foundation of Greater Chicago
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Curing #scleroderma will take all of us, and you can be part of the special movement that makes it happen. Whether launching new support groups for patients, teaching our community how to manage the disease, or directly supporting scientific and medical professionals with research funding, your gift personally expands the Foundation’s reach and makes a real-life difference for people with scleroderma. Change lives. Give hope. Spread love this holiday season by making your year-end, tax-deductibl
563 viewsDec 19, 2023
FacebookNational Scleroderma Foundation
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Perseverance: It’s a trait that describes Ian Crego, a Michigan high school student with scleroderma, and so many others with scleroderma worldwide. Learn how the Scleroderma Foundation supports the community and see how to get involved this June Awareness Month. https://bit.ly/3wPIZws | National Scleroderma Foundation
98K viewsJun 1, 2021
FacebookNational Scleroderma Foundation
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