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Looking back at old video, now seeing where exactly her regression happened hurts so much! Knowing what I know now about Rett Syndrome, it breaks my heart seeing it happen. I recorded a lot because no one would listen, no one saw what I saw.. I wish I can go back to these moments to hold on to them a little longer. It breaks me to see her little face so confused, her tears as she woke up.. now knowing she was not understanding what was happening to her. 💔 I hate that its you my Jay. #indigo #re
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