Genzyme is taking rare disease awareness to another level with a documentary film, dubbed “Facing Fabry Together,” that follows four families grappling with the genetic disorder. Genzyme manufactures ...

Rare diseases are by definition uncommon. The people in the community surrounding rare diseases--patients, caregivers, healthcare providers and pharma--actually have much in common. And that uniquely ...

Along the way, Bigelow met Daniel DeFabio, “another rare disease dad,” who had made a film about his son’s battle with Menkes Disease. The two stayed in touch and, in 2017, DeFabio proposed organizing ...

The newest stop on the film festival circuit is one with entries that are all about rare diseases. Disorder: The Rare Disease Film Festival is the first of its kind in the U.S., with pharma sponsors ...

A feature length documentary film based in Jacksonville aims to raise awareness for Parkinson's Disease. Directed by Justin Jay Jones, 'On Firm Ground' features two people with Parkinson's as they ...

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Sonia Barrett's documentary decries the pernicious effects of the medical and pharmaceutical industries. By THR Staff The Business of Disease Still - H 2015 According to her website, debuting ...

Daniel DeFabio and his wife took their son Lucas to see a geneticist a few days before his first Christmas. He had just turned 1, and had regressed: He was no longer able to roll himself over and ...

Eye care practitioners have a wealth of new information to inform their handling of dry eye disease with the third iteration ...

"I can feel sorry for myself, but I don't have time for that," Fox said of living with Parkinson's disease while speaking at a South by Southwest (SXSW) Film Festival screening for his documentary ...

The disease expert Brian Amman, an ecologist for the Centers for Disease Control and Prevention, spoke with Wired to review the accuracy of how movies and TV shows have portrayed disease outbreaks.