Genzyme is taking rare disease awareness to another level with a documentary film, dubbed “Facing Fabry Together,” that follows four families grappling with the genetic disorder. Genzyme manufactures ...
Rare diseases are by definition uncommon. The people in the community surrounding rare diseases--patients, caregivers, healthcare providers and pharma--actually have much in common. And that uniquely ...
Along the way, Bigelow met Daniel DeFabio, “another rare disease dad,” who had made a film about his son’s battle with Menkes Disease. The two stayed in touch and, in 2017, DeFabio proposed organizing ...
The newest stop on the film festival circuit is one with entries that are all about rare diseases. Disorder: The Rare Disease Film Festival is the first of its kind in the U.S., with pharma sponsors ...
A feature length documentary film based in Jacksonville aims to raise awareness for Parkinson's Disease. Directed by Justin Jay Jones, 'On Firm Ground' features two people with Parkinson's as they ...
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It took only a little sunlight to launch a deadly disease in several children on the Navajo Nation. Afflicted with a rare and fatal genetic condition called XP, or Xeroderma Pigmentosum, the ...
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